“Gov. Cuomo just signed into law a measure codifying federal protections permitting the words dyslexia, dysgraphia (which affects writing ability) and dyscalculia (affecting mathematical processing) to be used in determining eligibility for special education services and developing Individualized Education Plans, or IEPs.”
This legislation matters. Before, educators were discouraged from using specific terms such as these when writing IEPs, even when the evidence was clear that a child struggled in one of these areas. I think this is a step forward in better targeting children’s needs.
That said, however, I also have some hesitation about the use of these terms.
1) Many IEPs are written with few (relatively) objective data points as a reference. Most schools don’t have sophisticated enough assessments to be able to make a diagnosis that is so specific. As I have always cautioned parents at an IEP meeting, we are making an educational diagnosis, not a medical diagnosis. But when people start throwing around terms like “dysgraphia,” it sounds officially sanctioned, like it’s the pronouncement of a doctor, when it’s really just a supposition made with little background nor training on assessing and supporting these specific disabilities. And it may also end up promoting some learned helplessness on the part of both teachers and students when they start labeling general academic difficulties with these terms.
2) Another problem with such terms is their lack of specificity. There’s debate about whether dyslexia even exists. Having worked with students with all three of these conditions, I can assure you it definitely does. But you shouldn’t have to take my word for it. Fortunately, researchers are beginning to uncover more knowledge about such conditions. For example, it appears that dyslexia is related to trouble with phonological processing which stems from a reduced plasticity of the brain.
The difficulty, however, is that even when we apply more specific terms like “dysgraphia,” it’s still not very clear about what exactly needs to be done to address the issue. We know that early intervention is essential, but what does one do with a dysgraphic student in 8th grade? Teachers (and parents) would love to know what that medicine should be.
3) What if a student demonstrates all three of these things (dyslexia, dysgraphia, dyscalculia)? We often end up just labeling them LD (a “learning disability”) and leaving it at that. But this begs the question of whether it is then even a disability at all. It may be a compounding of socio-economic factors, environmental factors, and a lack of access to early interventions and support.
But at the end of the day, whatever the cause, and whatever the label, is all less relevant than what is being done once the label has been applied.
What will we do to support children identified as struggling mightily with reading, writing, and math? And is what we’re doing actually helping? That’s the most important thing.
Finally getting serious about educating kids with dyslexia, NY Assemblymember Jo Anne Simon in the NY Daily News